Ileostomy
An ileostomy is a stoma that has been constructed by bringing the end of the small intestine (the ileum) out onto the surface of the skin. Intestinal waste passes out of the ileostomy and is collected in an external pouching system stuck to the skin. Ileostomies are usually sited above the groin on the right hand side of the abdomen.
Reasons for having an ileostomy
Ileostomies are necessary where disease or injury has rendered the large intestine incapable of safely processing intestinal waste, typically because the colon has been partially or wholly removed. Diseases of the large intestine which may require surgical removal include:
Crohn's disease
Ulcerative colitis
Familial adenomatous polyposis
(Total Colonic) Hirschprung's Disease
An ileostomy that may also be necessary in the treatment of colorectal cancer; one example is a situation where the tumor is causing a blockage. In such a case the ileostomy may be temporary, as the common surgical procedure for colorectal cancer is to reconnect the remaining sections of colon or rectum following removal of the tumor provided that enough of the rectum remains intact to preserve sphincter function. In a temporary ileostomy, a loop of the small intestine is brought through the skin, and the colon and rectum are not removed. Temporary ileostomies are also often made as the first stage in surgical construction of an ileo-anal pouch, so fecal material doesn't enter the newly-made pouch until it heals and has been tested for leaks – usually a period of eight to ten weeks. The temporary ostomy is then "taken down" or reversed by surgically repairing the loop of intestine which made the temporary stoma and closing the skin incision.
Living with an ileostomy
People with ileostomies must wear an external pouch to collect intestinal waste. Modern pouches are made of lightweight plastic and are attached to the skin with an adhesive wafer made of pectin or similar organic material. The wafer is cut with a hole to fit snugly around the base of the stoma to prevent leakage of stool onto the skin (and consequent skin irritation). The pouch and wafer may be purchased as a one-piece unit or as two separate pieces which attach with a plastic locking ring. The latter arrangement allows pouches to be swapped without removing the wafer; for example, some people prefer to temporarily switch to a "mini-pouch" for swimming or other activities. People with ileostomies typically use an open-end, or "drainable" pouch that is secured at the lower end with a leakproof clip, rather than a closed-end pouch which must be thrown away when full. Many manufacturers now offer a velcro-type closure at the end which eliminates the need for the clip. Ordinarily the pouch must be emptied several times a day (many ostomates find it convenient to do this whenever they make a trip to the bathroom to urinate) and changed every 2-5 days, when the wafer starts to deteriorate.
Ostomy pouches fit close to the body and are usually not visible under regular clothing unless the wearer allows the pouch to become too full.
Some people find they must make adjustments to their diet after having an ileostomy. Tough or high-fiber foods (including, for example, potato skins and raw vegetables) are hard to digest in the small intestine and may cause blockages or discomfort when passing through the stoma. Chewing food thoroughly can help to minimize such problems. Some people also find that certain foods cause annoying gas or diarrhoea. Nevertheless, people who have an ileostomy as treatment for inflammatory bowel disease typically find they can enjoy a more "normal" diet than they could before surgery.
Other complications can include kidney stones and gallstones.
Other options
Since the late 1970's an increasingly popular alternative to an ileostomy has been the ileo-anal pouch. With such a pouch an internal reservoir is formed using the ileum and connecting it to the anus, after removal of the colon and rectum, thus avoiding the need for an external appliance.
Unfortunately, I was not a good candidate for this.